Ewing's Sarcoma Bone Cancer

There is no known cause of Ewing's sarcoma.

Most cancers are known to arise from a certain kind of tissue or organ. For example, breast cancer arises from breast cells. In the case of Ewing's sarcoma, however, doctors do not know the exact type of cell where the cancer starts.

What is known is that the cancer forms when changes occur in a cell's chromosomes. In Ewing's sarcoma cells, the genetic... material in chromosomes #11 and #22 is mismatched. This genetic abnormality is not inherited from a child's parents - the chromosomal changes occur after a child is born.

It is not understood why this abnormality occurs. Doctors have not identified any risk factors that make one child more susceptible than another. The tumor does not develop as a result of any dietary, social, or behavioral habits. There are no known ways to prevent the disease, and parents should know that there is nothing they could have done differently to prevent their child's tumor.

 

 

 

-To the lady that suggested I could have prevented this Cancer by taking my prenatal vitamins properly. (which I did) ~ bah..... some people!

Jazz Bear and Jery Sloan

Who is special and gets visits from the JAZZ BEAR and JERRY SLOAN

That's right  TRISTAN does!!!

        So Awesome brightend this boys day....

 

How exciting it was and  so fun it turned a sad day into a Happy day thanks for setting this up and for Brightening our day with some awesome people!!

FUN with Dad

Me and Tanner Got sick with the late Stomach flu so Chris got Tristan out of the house and looks like they had a Blast a little jealous!!  :)

End or round 6

June 18th

Whoot whoot! Here we go with the end of round 6 (5 day Chemo)
Last round pre-surgery



June 19th

Tristan is in MRI now for a progress check on the tumors response to the Chemo. Pray for this miracle boy to have another miracle.

 

 

 

June 20th

 

 

I do not have detailed results but I did talk to the attending Dr. This morning and asked to look at the MRI results.
Things I know; the rumor is smaller. The tumor is still there.

 

 

Grandpa brought a Telescope and Tristan is trying to see home! ♥

June 21st/22nd

Tristan's surgery is officially on July 5th

thought/reflecion

 

I know this isn't the greatest picture (of a picture)... But if a picture could completely tell the story to date about Tristan, this could be that picture. This picture has been completely consuming my thoughts for the last few days. I ...can't stop looking at his big smile, arms as far out as they can go, he looks like his mind is free from all the bad, he is consumed in happiness. I know we can't be happy like this picture all the time otherwise we wouldn't know happiness, because we wouldn't know the difference.

I love my boys; I helped create them; I am supposed to protect them; I am responsible for them.
Lately I have become so obsessed in continuous thought/reflecion about how incredibly sad this is to me; the human condition of sadness; completly consumed in all of everything; confussion, fear, optimism, dread, anxiety, terror, interrogitive (beyond inquisitive), angry, again fear, ultimatley LOVE. I didn't know that this level of sadness could possibly exist. The strange/bizarre dreams I have are now becoming less shocking and with their recurring routine I am almost numb to their affect.

Tristan, is doing a good job reconciling the situation. I sometimes catch him (when we're driving somewhere) quietly looking out the window, beyond the approaching road, beyond the plants and the trees (beyond the viewable anything; maybe). And I just quietly observe him. I have always thought about how protective Tristan was from the beginning with all friends, his brother, the innocent, his mother. He cares about others with true intent. Why do these things happen to the innocent, the pure, the young, the productive, the beautiful? Why Tristan.....

 

 

 

DISNEYLAND

June 13th

Good news: WE ARE GOING TO DISNEYLAND
Bad news: Counts are STILL too low for the Chemo

This is how we roll

 Leavin on a jet plane

Crazy landing! But we are here safe n sound headed to the hotel,  The plane was landing and just about to touch down when it suddenly took off again, it was weird. Then we circled around over the ocean. Finally the pilot said that it did not look like a safe landing to them so we were going to circle around and land again. Scarey!

June 14th

Even though the air is cool it doesn't stop these boys. (they say the water is warm)

June 16th

Today life is perfect! My boys are running, playing and building a sand castle on the beach.
I'm reading a book and Chris is actually relaxing!
I am so thankful for this day!

HEAVEN

Happy fathers day

 Why only one set of footprints in the sand?

That is when I carried you!!

Smiles and NO worries

Disneyland truly is the happiest place on earth we went into one of the stores and Tanner was making a lightsaber and Tristan kinda looked sad I guess, One of the worker lady's (Jody) came over and gave him a badge and said what is it I can do to make you smile.. Tristan's reply nothing I am fine... We went up to desk to check out and she said still no smile, what can I get you to make you smile do you like LEGOS? Tristan :Yes She went in the back and I am not kidding like 10 workes come out and all carring boxes big and small of Star wars legos put them on the table and say " PICK ONE ANY ONE YOU WANT" It's yours .. Tristan usually being shy jumped up out of the wheelchair and grabbed a box.. They tell him its yours at least we made you smile and Tristan and Tanner ask  " Can you really do that just give it?" There reply WE CAN DO ANYTHING WE WANT ITS DISNEYLAND!!!! He held it all the way home with a HUGE smile on his face..THANK YOU

It was nice to get away and pretend like Cancer never existed!!

 

2 weeks and still no Chemo

June 7th

It's been almost 2 weeks, Tristan is finally feeling ok today! -- Chemo scheduled for Tomorrow, isn't that just how it goes?!

 

 later that day

 

I don't want to be the ''Mom' today! Tristan's counts are still too low for chemo ( I swear its only because we had planned a Disneyland last min. trip for next week just after he finished). Now we have to wait until monday.
I don't know what to do now??! Ugh

 

 They draw blood tomorrow and have him for Chemo Monday for the 5 days ( 'if' his counts are good.)  Our trip to Disneland is suppost to start  on Wed.  We are trying to figure it all out still right now we live  one day at a time no plans made in advance..

 

 

June 9th

 

Herriman Days

 

Tristan did awesome today went to Tanner's baseball game then we walked up and went to a car show and made it threw the whole thing... then we went to check out the Rides while we were up there  Tristan seen a girl there wth cruches and a amputie leg ....  He wanted so bad to go and ask her what happend or why she had this done..  knowing how that feels we did not want to go ask or bug her, but Tristan insisted so together approched her and she was very nice, Tristan said I am going to have that done and Tiffany asked if you don't mind can you tell us what happenend she told them she was born with a smaller limb she had been like this her whole life Tristan's concern " has it slowed you down at all? " ....  her reply " I dance and run, I can do anything everyone else can do it doesn't slow me down at all" .. with a BIG smile on his face they said Thank you and sorry to bug you ...
So glad he had a chance to talk to her and have her share ..