tag:blogger.com,1999:blog-14286333585592569122024-03-12T21:40:39.754-07:00Tristan, Bone Cancer's got nothing on "U"tristanhttp://www.blogger.com/profile/12963446237650977285noreply@blogger.comBlogger43125tag:blogger.com,1999:blog-1428633358559256912.post-33897555106431927522013-01-22T09:52:00.003-08:002013-01-29T08:26:50.056-08:00It's complicated<div id="gfmwidget5078">
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<span style="font-weight: normal;"><i><span style="color: red;"><span style="font-size: large;">Nearly one year later and I am still in disbelief. Tonight I am saddened with the toll Cancer pushes on our family emotionally. </span></span></i></span></h2>
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<i style="font-weight: normal;"><span style="color: red;"><span style="font-size: large;">It is such a rollercoaster. At times I feel we are all on the same ride fighting together, yet the things we see and feel are completely different. </span></span></i></h2>
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<i style="font-weight: normal;"><span style="color: red;"><span style="font-size: large;">Emotionally it has pushed relationships to a breaking point, ready to snap it right in half. It has made us question every decision and then turn on each other to question each others choices and thoughts. I am sickened by the destruction it can slowly cause but quickly build. Emotionally, mentally, physically, spiritually I am drained. We all are, but we keep pressing on because it is the only option we will accept. </span></span></i></h2>
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<i style="font-weight: normal;"><span style="color: red;"><span style="font-size: large;">At Times during this trial I have felt closer to my husband and family then I ever thought possible. I have come to realize that goes both ways. At times I feel I don't even know the person I have been married to for nearly 14 years because this is tearing us apart. </span></span></i></h2>
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<i style="font-weight: normal;"><span style="color: red;"><span style="font-size: large;">I can't describe how good it feels to know that we are near an end to one of the most difficult parts. We live each day to watch Tristan succeed, fight and thrive. We live each day to see his brother do the same, because this fight is personal for him as well. </span></span></i></h2>
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<i style="font-weight: normal;"><span style="color: red;"><span style="font-size: large;">I thank my Father in Heaven for a faith that I know I can get on my knees and pray and he is right there with me listening, crying and carrying my family through these times. </span></span></i></h2>
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<i style="font-weight: normal;"><span style="color: red;"><span style="font-size: large;">It is not easy. It just plain stinks. I hate most of what has been happening and can't even begin to explain its complicated process. </span></span></i></h2>
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<i style="font-weight: normal;"><span style="color: red;"><span style="font-size: large;">I do know that it will be ok because Tristan won't give up and that is that. </span></span></i></h2>
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<i style="font-weight: normal;"><span style="color: red;"><span style="font-size: large;">Thank you Tristan for your strength, your spirit your unwavering faith. It has been at your weakest moments that you carry our family through. </span></span></i></h2>
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<i style="font-weight: normal;"><span style="color: red;"><span style="font-size: large;">I feel embarrassed and guilty for accepting financial assistance knowing that there are families struggling much more than ours. It is a burden it is unexpected but when is it a need? It's difficult to accept help when you feel you can do it on your own. It breaks my heart to know my husband carries this personally on his shoulders. Fathers want to provide for, care for and fix it, all themselves. My husband is no different just a bigger fix. I respect and love that about him but acknowledge that we can't allow our pride to step on us and leave a bruise. </span></span></i><i style="font-weight: normal;"><span style="color: red;"><span style="font-size: large;">I want to thank you for your generosity it has eased some of that burden. </span></span></i></h2>
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<i style="font-weight: normal;"><span style="color: red;"><span style="font-size: large;">I'm just going to Thank you all for EVERY single way you have supported my family this past year. It is not something that I or we could ever repay. My love for people, other families and strangers has developed in ways that I can barely comprehend.</span></span></i></h2>
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<i style="font-weight: normal;"><span style="color: red;"><span style="font-size: large;">Thank you, Love you all. I do ask for continued support and prayers as we face the emotional and metal hole that we will now begin to fill . Nobody ever said it would be easy but I do remember hearing it will be worth it! </span></span></i></h2>
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<i style="font-weight: normal;"><span style="color: red;"><span style="font-size: large;">I can't wait to feel that worth again.</span></span></i></h2>
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<i style="font-weight: normal;"><span style="color: red;"><span style="font-size: large;">Tristan will ring that bell and he will have an army beside him as always for that I thank you. </span></span></i></h2>
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<i style="font-weight: normal;"><span style="color: red;"><span style="font-size: large;"><a href="http://www.gofundme.com/"> to update soon. I have had a hard time writing about our daily life because I don't like to relive some of the events. :( There are some wonderful things happening though that I do need to share so I will get on top of that.</a> </span></span></i></h2>
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<span style="font-weight: normal;"><i><span style="color: red;"><span style="font-size: large;">For now if you would like to read about Tristan go to his Facebook page </span></span></i></span></h2>
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<span style="font-weight: normal;"><i><span style="color: red;">https://www.facebook.com/FightingTristansBoneCancer</span></i></span></h2>
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<script type="text/javascript">var rand=Math.random ();var widgetproto = ("https:" == document.location.protocol) ? "https:" : "http:"; document.write(unescape("%3Cscript </script>tristanhttp://www.blogger.com/profile/12963446237650977285noreply@blogger.com8tag:blogger.com,1999:blog-1428633358559256912.post-14916925880769636842012-08-03T18:35:00.000-07:002012-08-03T22:58:51.142-07:00Ramble<br />
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It's not often that I feel like writing on this blog, but Today I do. I know that many of you are following us on Facebook and know that Tristan has been in the Hospital for 8 Days straight. He is finally getting stronger and should be able to go home sometime this weekend we hope.<br />
Spending several nights in the hospital gives me too much time to think! I have had many thoughts running around in my brain this week.<br />
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I have been more afraid this week than I can remember ever in my life. I have watched Tristan suffer much more than I could have ever thought possible. I have rubbed and massaged his back until my fingers literally ache. I have worried until my own stomach curls and my heart breaks. I felt more helpless this week as a mother than ever before. Tristan has been so sick. It is frightening to me how rapidly his body declined in health. I wanted to scream at the Doctors to do something more to fix him! I spent many many, many hours in prayer pleading and begging for him to find relief from the pain and to begin to heal. I begged many of you for prayers as well and I know that they are answered.<br />
Here I go with some cliche' saying "they aren't always answered the way we want them to be" but we try to find the real reason for the suffering and pain right?<br />
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I feel comforted now, knowing that we have found a source to his fevers. I have seen him get stronger the past 2 days and his body begin to fight the nasty infection that was beginning to take over.<br />
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This Cancer stuff---Its Bad, Its sad, its ruthless! I hate it.<br />
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On Saturday July 28th we had a big Fundraiser motorcycle rally & 5K run that we had planned on for months. Cancer took it away from Tristan. He would have loved to see the support and the love that was there in his honor. Many times this week he has mentioned how unfair it is that he missed his own fundraiser.<br />
UNFAIR? I'll say unfair. It hurts my heart to think of how "unfair" this all is for my 10 year old.<br />
School started last week, all of his friends and his brother Tanner started a new school year.<br />
Tristan had round 8 of Chemo therapy. Many of our friends and neighbors are squeezing in last minute summer vacations and Waterpark fun. Tristan gets a very expensive all inclusive stay at Primary Children's Hospital & a cool sponge bath for fevers.<br />
Most of his friends had football tryouts this week, Tristan is learning how to hop across the room on one leg.<br />
No, this IS NOT FAIR!<br />
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I find myself feeling Jealous and frustrated that we cannot do those things. I feel bad for Tanner because his life has changed so much with this cancer also. What a great kid he is to go to school alone each day, finish his homework sometimes alone all the while I know he worries tremendously about his brother.<br />
I feel sad sometimes knowing that life just keeps going on outside the hospital walls. It doesn't wait for Tristan to get better it just passes him by.<br />
This has been by far the most difficult, painful, crazy, exhausting week yet.<br />
I hope that we do not ever get the chance to Top it!<br />
The weird part in all of this is that I feel blessed in many ways. I do not always try to put a positive spin on things but guess it is just always there!<br />
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Our family has learned so much in such a short time. We are truly stronger as a family more now than ever. We have learned how to make the impossible possible. We work together, roll with the punches, comfort each other, cry together and feel the pain and suffering together.<br />
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I feel bad for the moms that do not know their children like I know mine. I feel bad for the families that don't learn how to come together to make important things possible.<br />
We did not ask for & do not want these trials. I won't say that I would do this again but the people we are today I would not change.<br />
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I have a 10 year old hero that I happened to give birth to. I am lucky enough to feel grateful that he and all of us are alive each & every day, hour and minute.<br />
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I refuse to take the small things for granted, even if it is just a smile.<br />
I love my family. I love my friends & all the people that support us.<br />
I have felt a love, comfort, compassion and prayers from strangers that carry us through each day.<br />
I thank you all very much again and again and again!<br />
We are blessed and continue to be blessed each day with the love from all of you, your prayers and a God that is Good and love us too.<br />
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We are tired, we are weak, we are strong and we will fight! This boy proves that even at our weakest point we are strong enough to fight.<br />
Love to all & thanks for letting me ramble.<br />
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<br />tristanhttp://www.blogger.com/profile/12963446237650977285noreply@blogger.com13tag:blogger.com,1999:blog-1428633358559256912.post-21419721418648895742012-07-29T15:57:00.000-07:002012-07-29T15:57:01.446-07:00This is our Fighter<div class="separator" style="clear: both; text-align: center;">
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<br />tristanhttp://www.blogger.com/profile/12963446237650977285noreply@blogger.com2tag:blogger.com,1999:blog-1428633358559256912.post-23191826781844036252012-07-19T21:03:00.000-07:002012-07-19T21:12:06.159-07:00Fundraiser & T-shirtsI am so excited with our Brainwave even Fundraiser Coming Up next saturday the 28th we can all have out Team Tristan matching T-shirts because they just arrived!!!
T-shirts
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*Reg Fit 'T' S, M, L, & XL $12 XXL & XXXL $15
*Feminine Cut 'T' S, M, L $14
*Child XS (2-4) S (4-6) M, L $10
Child XL will be an Adult S $12
you can click the donate button on the right to pay please specify sizes in the notes and add $5 for shipping if you want them shipped
If You haven't already registered for the 5K, Motorcycle Rally or Poker tournament GO NOW!!
There will lots of activities for kids also at this all day Event
Things to do beside walk or ride in motorcycle rally Check out the motorcycle show and also the motorcycle stunt riders. Kids can do our waterslide bounce house ride in a train climb the rock wall. Visit with local Royality visit our kids store listen to the great bands shop at our vendors. something for everyone. Please make it a point to stop by and help some of these great families. We are shooting for 400 motorcycles this year we have over 200 signed up for the walk run so keep spreading the word. REMEMBER IT IS GOOD LUCK TO PAY IT FORWARD AND HELP OTHERS YOU NEVER KNOW WHEN YOU MAY NEED HELP!!!!!!! July 28th at Leatherheads that is in the parking lot of Cowabunga Bay the old VF Factory Mall
http://www.chidrenandtheearth.com
Under Brainwave event and Register for Team Tristan
<a href="http://3.bp.blogspot.com/-R6QwzcRQwhM/UAjYZ3g9rrI/AAAAAAAABKg/ONcwhX7Cu6I/s1600/540071_3936657425693_655323008_n.jpg" imageanchor="1" style=""><img border="0" height="320" width="247" src="http://3.bp.blogspot.com/-R6QwzcRQwhM/UAjYZ3g9rrI/AAAAAAAABKg/ONcwhX7Cu6I/s320/540071_3936657425693_655323008_n.jpg" /></a>
<a href="http://3.bp.blogspot.com/-WgXHkP2jdvo/UAjYZ9WFUEI/AAAAAAAABKs/q_GXkuocb6A/s1600/208911_4068753568014_53039990_n.jpg" imageanchor="1" style=""><img border="0" height="320" width="234" src="http://3.bp.blogspot.com/-WgXHkP2jdvo/UAjYZ9WFUEI/AAAAAAAABKs/q_GXkuocb6A/s320/208911_4068753568014_53039990_n.jpg" /></a>tristanhttp://www.blogger.com/profile/12963446237650977285noreply@blogger.com0tag:blogger.com,1999:blog-1428633358559256912.post-69931572904766011032012-07-06T14:25:00.002-07:002012-07-19T20:44:03.109-07:00Todays Update post surgery day<br />
<span class="messageBody" data-ft="{"type":3}">Tanner, Chris and I each woke up with a massive headache this morning. </span><span class="messageBody" data-ft="{"type":3}">Tristan is doing well, he has some pain that they are managing with a pain pump. Sometimes he cannot get it fast enough. Once again we had some very special and incredible visitors today! He is resting now. <br /> Thank you Eric Merkley & Karsen and Nicole</span><br />
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Tristan is Visiting a bunch, sleeping A lot, Itching from meds very very much, and even Walking a Little !!!!</div>
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******** Pictures of his leg at the bottom so don't look if your not ready :)</div>
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Out crusing the halls like a ROCKSTAR!! </div>
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<span class="messageBody" data-ft="{"type":3}"> These <span class="commentBody" data-jsid="text"> visitors were real heros and also had amputations! These kids develop an instant bond and strength from one another. </span></span><span class="messageBody" data-ft="{"type":3}"><span class="commentBody" data-jsid="text"></span></span></div>
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<span class="messageBody" data-ft="{"type":3}"><span class="commentBody" data-jsid="text"> Eric Merkley</span></span></div>
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He is now PROUD to show his LEG !! :)<br />
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<br /></div>tristanhttp://www.blogger.com/profile/12963446237650977285noreply@blogger.com2tag:blogger.com,1999:blog-1428633358559256912.post-33079912298945112652012-07-06T13:49:00.000-07:002012-07-06T13:49:30.354-07:00Last few Posts done by Tineil HuntingtonI am Tiffany's sister Tineil Huntington and I have been helping Tiffany try to catch this BLOG up the best I can so she can go edit and add stuff as needed, instead of trying to do it all so thanks so much for all your love and support it is all felt and has been overwhelming at times for everyone.. THANK YOU <br />
tristanhttp://www.blogger.com/profile/12963446237650977285noreply@blogger.com2tag:blogger.com,1999:blog-1428633358559256912.post-14116987994015457502012-07-06T13:45:00.000-07:002012-07-06T13:45:25.858-07:00Upcomming Fundraising Events for Tristan<h2 class="mbs fbEventHeadline fsxl fwb fcb" content="2012-07-14T09:00:00-07:00" itemprop="summary">
Paparazzi Fundraising Party for Tristan!</h2>
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<span aria-controls="js_2" aria-haspopup="true" aria-owns="js_2" class="fbEventPrivacy" data-hover="tooltip"> Event</span> · <span class="fsm fwn fcg">By <a data-hovercard="/ajax/hovercard/user.php?id=1516821115" href="https://www.facebook.com/tiffany.dinkelman">Tiffany Dinkelman</a></span></div>
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<strong>Saturday, July 14, 2012</strong></div>
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10:00am</div>
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<span class="visible"><span>Tiffany Dinkelman's house, let me know if you need directions</span><wbr>!</span></div>
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I'm hosting a Paparazzi Jewelry party, in my home, Saturday July 14th. All proceeds will go directly to Tristan and his family to help cover medical costs. Tristan was diagnosed with a rare bone cancer and needs to have his leg amputated. He is such a sweet boy, and could<span class="text_exposed_hide">...</span><span class="text_exposed_show"> really use our help and support. </span></div>
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Tristan's Words:</div>
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My name is Tristan I am 10 Years Old. I have a rare Bone Cancer called Ewings Sarcoma in my foot. I have to spend a lot of time at Primary Children’s hospital getting Chemo treatments. Chemo makes me feel sick, very tired and gives me mouth sores.</div>
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In July I will be having a below the knee leg amputation to help remove my tumor. I will still have to have a lot of Chemo treatments after the amputation to stop the Cancer from spreading.</div>
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Before I had cancer I liked going to the beach in California, boogie boarding & dreamed of surfing. I like riding 4-wheelers and playing sports with my big brother Tanner. I love the Utah Utes football team & I hope I can still go some Utah Football games between my Chemo treatments.</div>
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I am happy to have so many friends and family members that love and support me. When I am Cancer free I want to help other Cancer kids like me.</div>
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Thank You from, Tristan </div>
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Gift of Life Rally/Brainwave 5K walk, run or roll....</h2>
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<span class="fbEventPrivacy" data-hover="tooltip" id="uq1fmf_3"><i class="mrs fbEventPrivacyIcon img sp_1yssc9 sx_fc3f00"></i>Public Event</span> · <span class="fsm fwn fcg">By <a data-hovercard="/ajax/hovercard/page.php?id=142662402433066" href="https://www.facebook.com/pages/Children-and-the-Earth-Inc/142662402433066">Children and the Earth, Inc.</a></span></div>
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<strong>Saturday, July 28, 2012</strong></div>
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<span class="visible">The Draper Spectrum </span></div>
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<u><strong><span style="color: #cc0000;">SPONSORS PLEASE</span></strong></u></div>
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This fundraiser is a very big event that will have several different "Teams of Children" That will be participating. ALL $ from our personal team sponsors goes to Tristan! <br />This is Tax deductible and from what I hear if your business wants to be concidered of the top Uta<span class="text_exposed_hide">...</span><span class="text_exposed_show">h companies of the year, one of the things they ask is what charities you contribute to?! <br />If your company or someone you know wants to sponsor us please let me know ASAP! <br />We need to get the company logos to put on the flyers and T-shirts. <br /><br />The organization is called Children and The Earth.<br /><br />$200.00 Company name goes on Posters<br /><br />$500.00 Company name goes on posters. Any type of Kadvertising to go in bags for all walkers and riders and can advertise business on all event sites<br /><br />$1000.00 Name on Poster T-shirts Gets a Booth at the event and all the above benefits also. <br />(there will be a lot of people so if your company would benefit from a booth this is a great opportunity)<br /><br />It will be an all day event with a ton of activities for families, kids and adults!!! Huge prizes and raffles as well. <br />(they are accepting donations for prizes and raffle too) <br /></span><div class="text_exposed_root text_exposed">
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<span class="text_exposed_show"> <span style="color: #cc0000;"><strong><u>SIGN UPS FO 5K/ MOTORCYCLE RALLY</u></strong> </span></span></div>
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<span class="text_exposed_show">You can also participate by signing up for the 5K ($20 babies in strollers dont have to pay) or motorcycle Rally ($25 individual or $30 for double riders) <br /><br /><strong><span style="color: blue;">at Childrenandtheearth.com <span style="color: black;">make sure you select</span> <u>Team Tristan</u>. <br /></span></strong>If you have questions about this and cannot get ahold of me please call Jodi @ 801-347-1992<br /><br />email the logo's to jodi@wadsco.com and mail check's to Children and the Earth 252 w Cottage Ave Sandy UT 84070<br /><br />I am so excited about this event! They are allowing Tristan to ride his 4-wheeler to start off our team in the 5K. I think this will be a very big deal for him to see his enormous team of support and especially because it will be post-surgery! - <br /><br />Thanks to you all from the bottom of my heart ♥ <br /></span></div>
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tristanhttp://www.blogger.com/profile/12963446237650977285noreply@blogger.com2tag:blogger.com,1999:blog-1428633358559256912.post-42898274825294738322012-07-06T13:12:00.002-07:002012-07-06T14:26:33.164-07:00More special Vistitors after surgery<div style="clear: both; text-align: center;">
You can tell tristan is still a little groggy, in fact I am glad we got pictures or he might have thought he dreamed this... but we were so excited that as soon as he got to his room these guys showed up is put a smile on his face... </div>
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<a href="http://2.bp.blogspot.com/-beXRKqTGrTU/T_dDHGlhaBI/AAAAAAAABGs/MmKHYDhdWOI/s1600/ut.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" sca="true" src="http://2.bp.blogspot.com/-beXRKqTGrTU/T_dDHGlhaBI/AAAAAAAABGs/MmKHYDhdWOI/s320/ut.jpg" width="240" /></a></div>
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This is the 'mom connection' my boys friends mom knows these Players Matt asiata, shawn asiata, </div>
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and ray fenga and set this up. </div>
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Thank you thank you </div>
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<a href="http://4.bp.blogspot.com/-E0anWX9isCU/T_dDL2PDwcI/AAAAAAAABHE/YIvvWkUhTBY/s1600/utes.jpg" imageanchor="1" style="clear: left; cssfloat: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="320" sca="true" src="http://4.bp.blogspot.com/-E0anWX9isCU/T_dDL2PDwcI/AAAAAAAABHE/YIvvWkUhTBY/s320/utes.jpg" width="240" /></a><a href="http://4.bp.blogspot.com/-wy6AKYTG42w/T_dDKaZgDLI/AAAAAAAABG8/fUpury9iI44/s1600/ute.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" sca="true" src="http://4.bp.blogspot.com/-wy6AKYTG42w/T_dDKaZgDLI/AAAAAAAABG8/fUpury9iI44/s320/ute.jpg" width="240" /></a></div>
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Tanner says " <span class="commentBody" data-jsid="text">That was a fun visit from Matt asiata, shawn asiata, and ray fenga thanks for comming" </span><br />
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<a href="http://3.bp.blogspot.com/-2JQe7AylPB4/T_dQ-wqu3fI/AAAAAAAABII/MKx9fbT8wjc/s1600/utah.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" sca="true" src="http://3.bp.blogspot.com/-2JQe7AylPB4/T_dQ-wqu3fI/AAAAAAAABII/MKx9fbT8wjc/s320/utah.jpg" width="240" /></a>Sean Asiata Utah Football 2010</div>
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<a href="http://1.bp.blogspot.com/-Vl215PudFB8/T_dDPoX-EwI/AAAAAAAABHM/FKcfWGDleZ4/s1600/matt.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" sca="true" src="http://1.bp.blogspot.com/-Vl215PudFB8/T_dDPoX-EwI/AAAAAAAABHM/FKcfWGDleZ4/s320/matt.jpg" width="240" /></a> </div>
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<span class="commentBody" data-jsid="text">Matt Asiata Utah Ute football 2008 and Minnesota Viking now, </span><br />
<span class="commentBody" data-jsid="text"><span class="commentBody" data-jsid="text"> He was in town they have a short break... </span></span></div>
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<span class="commentBody" data-jsid="text"><span class="commentBody" data-jsid="text"> Took the time to come see my Baby.</span></span></div>
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<span class="commentBody" data-jsid="text"><span class="commentBody" data-jsid="text"> There are so many good people out there!</span></span></div>
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Cousin Riley</div>
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<a href="http://4.bp.blogspot.com/-PMqU8c0i6ck/T_dDSkqhnFI/AAAAAAAABHc/O6uN4hMC8nY/s1600/rayann.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" sca="true" src="http://4.bp.blogspot.com/-PMqU8c0i6ck/T_dDSkqhnFI/AAAAAAAABHc/O6uN4hMC8nY/s320/rayann.jpg" width="240" /></a><a href="http://4.bp.blogspot.com/-Vn7QfZYPDIw/T_dDUj9NfzI/AAAAAAAABHk/n1uPaCe55lU/s1600/grandma+n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" sca="true" src="http://4.bp.blogspot.com/-Vn7QfZYPDIw/T_dDUj9NfzI/AAAAAAAABHk/n1uPaCe55lU/s320/grandma+n.jpg" width="240" /></a></div>
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Raeann Grandma Northrup</div>
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</div>tristanhttp://www.blogger.com/profile/12963446237650977285noreply@blogger.com0tag:blogger.com,1999:blog-1428633358559256912.post-23262521977819843472012-07-05T20:39:00.004-07:002012-07-06T14:27:50.932-07:00Surgery Day<div class="separator" style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none; clear: both; text-align: center;">
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The Morning of Surgery<br />
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One brave boy headed of to surgury Dr said Lets get rid of this Cancer say goodbye, he gave hugs and walked away and around the corner... <br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEji3vFTFj_YFQZIgdlrRNcxXR4AquFKSYbe7GU9EYbinBMdPzYX5MnlnAZ6t-NkRdSyFau9FPF5x-ohajB6lSDOC234GTsYjv0C3VEPUwd-m0SXgyi8D2azPvqQG8AaBMP-VsWNhQ6hRTxW/s1600/jesus.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="264" sca="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEji3vFTFj_YFQZIgdlrRNcxXR4AquFKSYbe7GU9EYbinBMdPzYX5MnlnAZ6t-NkRdSyFau9FPF5x-ohajB6lSDOC234GTsYjv0C3VEPUwd-m0SXgyi8D2azPvqQG8AaBMP-VsWNhQ6hRTxW/s320/jesus.jpg" width="320" /></a></div>
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12pm </div>
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1 more hour please watch him and guide the doctors </div>
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2 pm and I still haven't seen my baby boy getting a little anxious!!</div>
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surgeon just came out to speak with us and his words were ' it could not have gone any better and hopefully he is now Cancer free"! We are still about an hour away from seeing him because he is getting casted and a pain block. </div>
Below is a picture of the implant this is supposed to help stop the bone from growing and save us from more surgeries in the future.<br />
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He is out and in a doom. He asked for Tanner first and nearly pulled him in the bed with him. Then he made a heart with his hands for us. It was hard to capture but heartwrentching. I ❤my family!!!</div>
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Tristan's snoring has never sounded more beautiful!!!!<br />
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Thank you once again for the prayers and love being sent our way. <br />
This has not and will not be easy!<br />
I think the tears cried now are tears of relief.</div>
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last update 9pm he is doing great and feeling NO pain!! </div>
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<br /></div>tristanhttp://www.blogger.com/profile/12963446237650977285noreply@blogger.com2tag:blogger.com,1999:blog-1428633358559256912.post-49072184106857146032012-07-05T19:57:00.000-07:002012-07-06T14:27:00.059-07:00Week of Surgery<div class="statusUnit">
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Monday July 2nd </div>
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Diagnosed 4 months ago. Surgery in 4 days. Pray for counts to be good tomorrow (now today). <br />
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****thank you for the many prayers that have carried us this far, they never go unnoticed!</div>
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Tuesday July 3rd </div>
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Tristan's Counts are high enough. Surgery is scheduled for 9:15 on Thursday. It is about a 3 hr surgery. He will stay in the hospital for 3-4 days have a cast over the stump for 2 weeks and then be fit for prosthetic 2-4 weeks after depending on swelling. Chemo resumes 2 weeks after surgery and they will have the results back on the % of cancer removed with the tumor that day also. <br />
We are all at peace for now so be happy not sad and please keep praying! <br />
Much much love and thanks from our family to all of yours.</div>
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Kinda bugged, got home and got a call to come back for blood and platelets... Wish they could have done that this morning!<span class="fcg"> </span></div>
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Wendsday July 4th</div>
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Happy Independence Day!</div>
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Day before the BIG SURGURY!!</div>
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Went to Spiderman w/ Mom, Dad and Tanner,Grandpa and Grandma (Down the hill) Riley,Gavin</div>
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Had a blessing </div>
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Ate crab for dinner</div>
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Went and watched fireworks with Mom, Dad and Tanner.</div>
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HAPPY FOURTH OR JULY!!</div>
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</div>tristanhttp://www.blogger.com/profile/12963446237650977285noreply@blogger.com0tag:blogger.com,1999:blog-1428633358559256912.post-56658704559319096622012-07-05T19:42:00.003-07:002012-07-05T19:42:31.412-07:00Dr Randall Our Surgeon<div class="tlTxFe">
<span class="fcg">This is our surgeon and one of my Heros these days. I am so thankful to him for helping to save my sons life. Pretty unbelievable that we have the BEST of the BEST on out team!</span></div>
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<h1>
R. Lor Randall, M.D., B.A.</h1>
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Bio</h3>
<rte_p rte_style="text-align: left;">R. Lor Randall, MD, FACS, is the Director of Sarcoma Services at the University of Utah’s Huntsman Cancer Institute and Primary Children’s Medical Center. He has a busy quaternary referral clinical practice specializing in musculoskeletal surgical oncology. Dr. Randall is also the Medical Director of the Huntsman Cancer Hospital Operating Rooms. The Sarcoma Services at HCI, because of its comprehensive experience in sarcomas, is continually developing and refining institutional based research and treatment protocols to improve the outcome in these rare but highly malignant conditions. HCI is a SARC participant and also is very active in the Children’s Oncology Group. <br /></rte_p><rte_p rte_style="text-align: left;"><br /></rte_p><rte_p rte_style="text-align: left;">Dr. Randall is a Professor of Orthopaedics and The L.B. & Olive S. Young Endowed Chair for Cancer Research. Among his academic responsibilities, he is chief of the Sarcoma Array Research Consortium (SARC) Lab, a laboratory investigating the molecular genetic mechanisms that give rise to sarcomas. In a joint effort with universities around the country, the SARC Lab is able to process and analyze donated tissue samples and report back to collaborators. The SARC Lab also has mechanistic experiments looking at genes involved in regulating apoptosis in sarcomas. Other areas of funded research include EGF modulated gene synchronization in desmoids. Randall developed the Sarcoma Advanced Research and Clinical (SARC) Fellowship. The Fellowship provides extensive exposure to tertiary/quaternary sarcoma surgery. The clinical experience includes the work up and management of the complete array of benign and malignant musculoskeletal neoplastic and pseudoneoplastic conditions, with broad pediatric and adult exposure. Basic, translational, and clinical research opportunities are readily available for Fellows. <br /></rte_p><rte_p rte_style="text-align: left;"><br /></rte_p><rte_p rte_style="text-align: left;">Randall came to Huntsman Cancer Institute in 1998 from The University of Washington, where he completed a fellowship in musculoskeletal oncology. He graduated from Yale University School of Medicine in 1992 and completed a residency in orthopedic surgery at the University of California, San Francisco. Dr. Randall's clinical and research efforts have been recognized internationally. Amongst his honors, he is the recipient of the Association of Bone and Joint Surgeons' Musculoskeletal Tumor Society Scholar Award as well as Best Paper Award and has been invited as an American-British-Canadian Traveling Fellow. He is presently President of the Connective Tissue Oncology Society, and a member of several national and international oncology and surgical societies including the National Comprehensive Cancer Network, Musculoskeletal Tumor Society, Children's Oncology Group, Interurban Orthopaedic Society and the Association of Bone and Joint Surgeons. He is a Fellow of the American College of Surgeons and is the author of numerous scientific manuscripts, book chapters and abstracts in the field of sarcoma surgery and biology. </rte_p></div>tristanhttp://www.blogger.com/profile/12963446237650977285noreply@blogger.com0tag:blogger.com,1999:blog-1428633358559256912.post-58645079889074098072012-07-05T19:29:00.001-07:002012-07-05T19:29:03.398-07:00Never a DULL moment<div class="separator" style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none; clear: both; text-align: center;">
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Something that started out as a fun get our mind of the surgury kind of day sure changed fast when the boys were fishing and looked up and seen the fire bigger then the house in front of us....</div>
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Why everywhere I go something is happening ?<a href="http://3.bp.blogspot.com/-AG0r74oDgvM/T_ZLeOIPJaI/AAAAAAAABEk/0PSiauA_WkA/s1600/fish+5.jpg" imageanchor="1" style="clear: left; cssfloat: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" sca="true" src="http://3.bp.blogspot.com/-AG0r74oDgvM/T_ZLeOIPJaI/AAAAAAAABEk/0PSiauA_WkA/s1600/fish+5.jpg" /></a><a href="http://4.bp.blogspot.com/-PHEE3vfH394/T_ZLcgBT8zI/AAAAAAAABEc/5m0LNllq4JU/s1600/fish+4.jpg" imageanchor="1" style="clear: right; cssfloat: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" sca="true" src="http://4.bp.blogspot.com/-PHEE3vfH394/T_ZLcgBT8zI/AAAAAAAABEc/5m0LNllq4JU/s1600/fish+4.jpg" /></a> </div>
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Gave us a scare even packed bags to get out fast after that fire in Herriman 2 years ago we were going to be ready..</div>
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Thank goodness it didn't come our way and the Firefighters did an AMAZING job fighting and protecting the houses..</div>
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<br /></div>tristanhttp://www.blogger.com/profile/12963446237650977285noreply@blogger.com0tag:blogger.com,1999:blog-1428633358559256912.post-40168648611386600952012-07-05T19:17:00.001-07:002012-07-05T19:17:13.091-07:00Ewing's Sarcoma Bone Cancer<div class="text_exposed_root text_exposed">
There is no known cause of Ewing's sarcoma.<br /><br />Most cancers are known to arise from a certain kind of tissue or organ. For example, breast cancer arises from breast cells. In the case of Ewing's sarcoma, however, doctors do not know the exact type of cell where the cancer starts.<br /><br />What is known is that the cancer forms when changes occur in a cell's chromosomes. In Ewing's sarcoma cells, the genetic<span class="text_exposed_hide">...</span><span class="text_exposed_show"> material in chromosomes #11 and #22 is mismatched. This genetic abnormality is not inherited from a child's parents - the chromosomal changes occur after a child is born.<br /><br />It is not understood why this abnormality occurs. Doctors have not identified any risk factors that make one child more susceptible than another. The tumor does not develop as a result of any dietary, social, or behavioral habits. There are no known ways to prevent the disease, and parents should know that there is nothing they could have done differently to prevent their child's tumor.</span></div>
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<span class="text_exposed_show"><span class="commentBody" data-jsid="text">-To the lady that suggested I could have prevented this Cancer by taking my prenatal vitamins properly. (which I did) ~ bah..... some people!</span></span></div>tristanhttp://www.blogger.com/profile/12963446237650977285noreply@blogger.com0tag:blogger.com,1999:blog-1428633358559256912.post-63485602601876557762012-07-05T19:13:00.004-07:002012-07-05T19:13:54.560-07:00Jazz Bear and Jery Sloan<div class="separator" style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none; clear: both; text-align: center;">
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That's right TRISTAN does!!!</div>
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So Awesome brightend this boys day.... <br />
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<a href="http://3.bp.blogspot.com/-Cfg3DvQxhoQ/T_ZIYdzeyLI/AAAAAAAABDw/9CqUu6Ekd8Q/s1600/tristan+and+bear.jpg" imageanchor="1" style="clear: right; cssfloat: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" sca="true" src="http://3.bp.blogspot.com/-Cfg3DvQxhoQ/T_ZIYdzeyLI/AAAAAAAABDw/9CqUu6Ekd8Q/s1600/tristan+and+bear.jpg" /></a><a href="http://4.bp.blogspot.com/-2nlZQ0nlGJI/T_ZISxyygvI/AAAAAAAABDY/k0M3ELAuKWE/s1600/family.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" sca="true" src="http://4.bp.blogspot.com/-2nlZQ0nlGJI/T_ZISxyygvI/AAAAAAAABDY/k0M3ELAuKWE/s1600/family.jpg" /></a><a href="http://4.bp.blogspot.com/-4TyrQ524g6k/T_ZIWQdELzI/AAAAAAAABDo/sKP2cKsuASs/s1600/ball+1.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" sca="true" src="http://4.bp.blogspot.com/-4TyrQ524g6k/T_ZIWQdELzI/AAAAAAAABDo/sKP2cKsuASs/s1600/ball+1.jpg" /></a></div>
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How exciting it was and so fun it turned a sad day into a Happy day thanks for setting this up and for Brightening our day with some awesome people!!<br />
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<br /></div>tristanhttp://www.blogger.com/profile/12963446237650977285noreply@blogger.com0tag:blogger.com,1999:blog-1428633358559256912.post-30794528714905277962012-07-05T18:59:00.000-07:002012-07-06T14:29:36.390-07:00FUN with Dad<div class="separator" style="clear: both; text-align: center;">
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Me and Tanner Got sick with the late Stomach flu so Chris got Tristan out of the house and looks like they had a Blast a little jealous!! :)tristanhttp://www.blogger.com/profile/12963446237650977285noreply@blogger.com0tag:blogger.com,1999:blog-1428633358559256912.post-65576817842078319992012-07-05T18:53:00.001-07:002012-07-05T18:53:30.260-07:00End or round 6June 18th<br />
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Whoot whoot! Here we go with the end of round 6 (5 day Chemo) <br />Last round pre-surgery<br />
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June 19th <br />
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Tristan is in MRI now for a progress check on the tumors response to the Chemo. Pray for this miracle boy to have another miracle.</div>
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June 20th</div>
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I do not have detailed results but I did talk to the attending Dr. This morning and asked to look at the MRI results. <br />Things I know; the rumor is smaller. The tumor is still there.</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhgSiaX5sK1do94gz8VsnIivqDtScMMOwvi9kV85pbMKYdT2xgKAtLyv5e39G2ykm1OMg4glJVYfWdea8TzpNOKndDNuyvuQ-JkU5CwLRTTH_KbUaAgv24KOk-48q0u8B7MzObX4IXs9pU-/s1600/Trist.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" sca="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhgSiaX5sK1do94gz8VsnIivqDtScMMOwvi9kV85pbMKYdT2xgKAtLyv5e39G2ykm1OMg4glJVYfWdea8TzpNOKndDNuyvuQ-JkU5CwLRTTH_KbUaAgv24KOk-48q0u8B7MzObX4IXs9pU-/s320/Trist.jpg" width="240" /></a></div>
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<a href="http://3.bp.blogspot.com/-Zv1jTAiuGGU/T_ZDns6PreI/AAAAAAAABCg/I1OjDN4wSL8/s1600/Grandpa.jpg" imageanchor="1" style="clear: right; cssfloat: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="320" sca="true" src="http://3.bp.blogspot.com/-Zv1jTAiuGGU/T_ZDns6PreI/AAAAAAAABCg/I1OjDN4wSL8/s320/Grandpa.jpg" width="240" /></a>Grandpa brought a Telescope and Tristan is trying to see home! ♥</div>
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June 21st/22nd</div>
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Tristan's surgery is officially on July 5th</div>
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<br /></div>tristanhttp://www.blogger.com/profile/12963446237650977285noreply@blogger.com0tag:blogger.com,1999:blog-1428633358559256912.post-32654551524722009842012-07-05T18:29:00.003-07:002012-07-05T18:29:45.474-07:00thought/reflecion<div class="shareUnit attachmentUnit">
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I know this isn't the greatest picture (of a picture)... But if a picture could completely tell the story to date about Tristan, this could be that picture. This picture has been completely consuming my thoughts for the last few days. I <span class="text_exposed_hide">...</span><span class="text_exposed_show">can't stop looking at his big smile, arms as far out as they can go, he looks like his mind is free from all the bad, he is consumed in happiness. I know we can't be happy like this picture all the time otherwise we wouldn't know happiness, because we wouldn't know the difference.</span></div>
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<span class="text_exposed_show"><br />I love my boys; I helped create them; I am supposed to protect them; I am responsible for them. <br />Lately I have become so obsessed in continuous thought/reflecion about how incredibly sad this is to me; the human condition of sadness; completly consumed in all of everything; confussion, fear, optimism, dread, anxiety, terror, interrogitive (beyond inquisitive), angry, again fear, ultimatley LOVE. I didn't know that this level of sadness could possibly exist. The strange/bizarre dreams I have are now becoming less shocking and with their recurring routine I am almost numb to their affect. </span></div>
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<span class="text_exposed_show"><br />Tristan, is doing a good job reconciling the situation. I sometimes catch him (when we're driving somewhere) quietly looking out the window, beyond the approaching road, beyond the plants and the trees (beyond the viewable anything; maybe). And I just quietly observe him. I have always thought about how protective Tristan was from the beginning with all friends, his brother, the innocent, his mother. He cares about others with true intent. Why do these things happen to the innocent, the pure, the young, the productive, the beautiful? Why Tristan.....</span></div>
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</div>tristanhttp://www.blogger.com/profile/12963446237650977285noreply@blogger.com0tag:blogger.com,1999:blog-1428633358559256912.post-27018470789978402382012-07-05T18:26:00.000-07:002012-07-05T18:54:42.963-07:00DISNEYLAND<div class="tlTxFe">
June 13th</div>
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Good news: WE ARE GOING TO DISNEYLAND <br />
Bad news: Counts are STILL too low for the Chemo</div>
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This is how we roll</div>
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Leavin on a jet plane </div>
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Crazy landing! But we are here safe n sound headed to the hotel, <span class="commentBody" data-jsid="text">The plane was landing and just about to touch down when it suddenly took off again, it was weird. Then we circled around over the ocean. Finally the pilot said that it did not look like a safe landing to them so we were going to circle around and land again. Scarey! </span></div>
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<span class="commentBody" data-jsid="text">Even though the air is cool it doesn't stop these boys. (they say the water is warm)</span></div>
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<span class="commentBody" data-jsid="text">Today life is perfect! My boys are running, playing and building a sand castle on the beach. </span><br />
<span class="commentBody" data-jsid="text">I'm reading a book and Chris is actually relaxing! <br />I am so thankful for this day!</span></div>
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<span class="commentBody" data-jsid="text">HEAVEN</span></div>
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Happy fathers day</div>
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Why only one set of footprints in the sand?</div>
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That is when I carried you!!</div>
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Smiles and NO worries </div>
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Disneyland truly is the happiest place on earth we went into one of the stores and Tanner was making a lightsaber and Tristan kinda looked sad I guess, One of the worker lady's (Jody) came over and gave him a badge and said what is it I can do to make you smile.. Tristan's reply nothing I am fine... We went up to desk to check out and she said still no smile, what can I get you to make you smile do you like LEGOS? Tristan :Yes She went in the back and I am not kidding like 10 workes come out and all carring boxes big and small of Star wars legos put them on the table and say " PICK ONE ANY ONE YOU WANT" It's yours .. Tristan usually being shy jumped up out of the wheelchair and grabbed a box.. They tell him its yours at least we made you smile and Tristan and Tanner ask " Can you really do that just give it?" There reply WE CAN DO ANYTHING WE WANT ITS DISNEYLAND!!!! He held it all the way home with a HUGE smile on his face..THANK YOU </div>
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It was nice to get away and pretend like Cancer never existed!!</div>
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<br /> </div>tristanhttp://www.blogger.com/profile/12963446237650977285noreply@blogger.com0tag:blogger.com,1999:blog-1428633358559256912.post-75910832916152597892012-07-05T18:01:00.000-07:002012-07-05T18:01:00.466-07:002 weeks and still no ChemoJune 7th <br />
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It's been almost 2 weeks, Tristan is finally feeling ok today! -- Chemo scheduled for Tomorrow, isn't that just how it goes?!</div>
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I don't want to be the ''Mom' today! Tristan's counts are still too low for chemo ( I swear its only because we had planned a Disneyland last min. trip for next week just after he finished). Now we have to wait until monday. <br />I don't know what to do now??! Ugh</div>
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T<span class="commentBody" data-jsid="text">hey draw blood tomorrow and have him for Chemo Monday for the 5 days ( 'if' his counts are good.) Our trip to Disneland is suppost to start on Wed. We are trying to figure it all out still right now we live one day at a time no plans made in advance..</span></div>
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<span class="commentBody" data-jsid="text">June 9th </span></div>
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<span class="commentBody" data-jsid="text">Tristan did awesome today went to Tanner's baseball game then we walked up and went to a car show and made it threw the whole thing... then we went to check out the Rides while we were up there Tristan seen a girl there wth cruches and a amputie leg .... He wanted so bad to go and ask her what happend or why she had this done.. knowing how that feels we did not want to go ask or bug her, but Tristan insisted so together approched her and she was very nice, Tristan said I am going to have that done and Tiffany asked if you don't mind can you tell us what happenend she told them she was born with a smaller limb she had been like this her whole life Tristan's concern " has it slowed you down at all? " .... her reply " I dance and run, I can do anything everyone else can do it doesn't slow me down at all" .. with a BIG smile on his face they said Thank you and sorry to bug you ... <br />
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<span class="commentBody" data-jsid="text"></span> </div>tristanhttp://www.blogger.com/profile/12963446237650977285noreply@blogger.com0tag:blogger.com,1999:blog-1428633358559256912.post-2755901859258881712012-07-05T17:37:00.001-07:002012-07-05T17:37:41.351-07:00Do you know what te GOLD ribbon means?Click one of the links below and find out what the GOLD ribbon means?<br />
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<a href="http://youtu.be/Cftbut7nkXA">http://youtu.be/Cftbut7nkXA</a><br />
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<a href="https://plus.google.com/share?url=http://www.youtube.com/watch?v%3DCftbut7nkXA%26feature%3Dshare&source=yt">https://plus.google.com/share?url=http://www.youtube.com/watch?v%3DCftbut7nkXA%26feature%3Dshare&source=yt</a><br />
<br />tristanhttp://www.blogger.com/profile/12963446237650977285noreply@blogger.com0tag:blogger.com,1999:blog-1428633358559256912.post-55422120299929668282012-07-05T17:19:00.003-07:002012-07-05T17:30:36.780-07:00KSL children's miracle network telethonJune 1st <br />
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1 month 1 bill. Thankful to have Insurance to help with some of this. There are many Children at Primary that do not.<br />
Tomorrow is the KSL children's miracle network telethon. <br />
Tristan's story will air sometime during the telethon also. Help if u can it's a great resource for many.<br />
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<a class="uiLinkSubtle" href="https://www.facebook.com/JustaTiff/posts/115535005251910"><abbr data-utime="1338583358" title="Friday, June 1, 2012 at 1:42pm">June 1</abbr></a><a class="uiStreamPrivacy inlineBlock fbStreamPrivacy fbPrivacyAudienceIndicator timelineStreamPrivacy" data-hover="tooltip" href="https://www.facebook.com/#" title="Tiffany's friends of friends"><i class="lock img sp_1yssc9 sx_c5169c"></i></a></div>
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Surgery date change</div>
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Didn't want to post this until I knew for sure but they have changed the date for surgery (yes already) to June 28th or July 5th. I will update when we know which one but it is for sure no longer on July 2nd.</div>
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That night we ended up in the Hospital AGAIN<br />
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We are home, IV fluids again until we go back for the last pre-surgery Chemo. He is still in major pain with mouth sores but improving.</div>
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June 2nd <br />
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Telethon and Bullriding...<br />
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Watched himself on T.V and then went up to Herriman PRCA rodeo and watched from the back of the truck!!</div>
<br />tristanhttp://www.blogger.com/profile/12963446237650977285noreply@blogger.com0tag:blogger.com,1999:blog-1428633358559256912.post-74052547869015814722012-07-05T17:10:00.000-07:002012-07-05T17:10:40.650-07:00Catch up on May<div class="tlTxFe">
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Just reading through Tanner's weekly school journal page.<br />My heart aches and beams at the same time. (Tiffany)</div>
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RESULTS IN FROM Chill's Give back night!!</div>
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Results from our Chili's give back night are in.<br />We will be getting a little over $900 for Tristan's bone cancer fund. Thanks for all the support!</div>
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</div>tristanhttp://www.blogger.com/profile/12963446237650977285noreply@blogger.com0tag:blogger.com,1999:blog-1428633358559256912.post-82767661754383675902012-05-22T12:16:00.000-07:002012-05-22T12:16:26.948-07:00Round 5 week 9<br />
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<a href="http://3.bp.blogspot.com/-e1bDH5ZncGY/T7vb3-PNSMI/AAAAAAAAA_Q/-WxGikookso/s1600/DSCN5960.JPG" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="240" src="http://3.bp.blogspot.com/-e1bDH5ZncGY/T7vb3-PNSMI/AAAAAAAAA_Q/-WxGikookso/s320/DSCN5960.JPG" width="320" /></a>This past week has been pretty incredible. The first thing I want to post about is Tristan playing Baseball. He has been building up the confidence to get out and play in one of the games for a while now. He had some real concerns that were holding him back. The main fear being that he may get hit with the baseball on his power port (Implanted IV port). I had not thought about this initially, he is so smart! He is also so brave , he warmed up with the boys before the baseball game, but was still not positive he could follow through. The game was exciting to watch and pretty close in he score when it was Tristans turn up to bat. He was so determined and acted as though he hadn't a fear in the world. The first pitch you wouldn't believe would have hit him (possible right in the port) but he tucked and covered. Do you think this stopped this boy from getting back up to bat again? NO way! Next pitch was a foul ball, then a strike (he was not happy about the strike) and immediately after hit a very good base hit towards short stop near first base. He had to run and run hard. He made it to first base with a lot of huffing and puffing and you could see the pride on his little face. He was able to take a break as the next batter got walked. Their was not a dry eye in our stands as he ran across Home plate contributing to the teams win and accomplishing a goal he had set for himself. The best part was that the other team had no idea this was happening so this was no sympathy run he earned it!<br />
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It was so wonderful being able to watch both my boys play together again on the same team. Tanner was so happy to have Tristan play and was unbelievable supportive of his brother. They have such a powerful bond and support for one another.<br />
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Friday Tristan, tanner and Chris went on an overnight father & Sons campout With Grandpa Robbie Chidester.<br />
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What a nice break and now back to Chemo. Tristan started Round 5 (of the 6 before surgery) and week 9 of Chemo therapy. He also had a scheduled follow-up Echocardiogram and EKG both of which came back normal. Yay!<br />
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Monday morning he did an audio recording of his story that he wrote for the Childrens Miracle Network and KSL TV telethon that will broadcast on KSL on June 2nd.<br />
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Today he is battling again, it was a rough morning for him and he is now resting, it is hard to get real sleep during the nights after Chemo because of the required every 2 hour bathroom visits. Hopefully things will go smoothly and we can be discharged at 6pm tonight and have Chili's for Dinner : )<br />
Thanks to all of you for your love and support with our Chili's fundraiser. Thank you to Chili's and Jamie Bergstrom for setting up the "Give Back Night" for Tristan!<br />
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<br />tristanhttp://www.blogger.com/profile/12963446237650977285noreply@blogger.com1tag:blogger.com,1999:blog-1428633358559256912.post-79995544450916002452012-05-15T05:02:00.000-07:002012-05-22T11:11:13.243-07:00Can't sleep : (Today I had a Radio Frequency Ablation procedure on my lower back (stemming from a car accident in Sept. 2011). These procedures have been postponed somewhat due to Tristans diagnosis and frequency of his treatments at Primarys. I have one procedure left and I will let the Insurance companies fight it out on who is going to pay who back. ~ the accident was not my fault. I was a passenger in and Enterprise mini van shuttle.<br />
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Anyhow what I was getting at is that my back has been pretty painful and I cannot sleep. I started thinking about Tristan and the pain he has endured and is yet to endure. I cant imagine the pain and the fear he will be having when he undergoes his "procedure" (amputation).<br />
I have not been concerned about this until I sat down tonight and realized that we are at the beginning of our 5th round of Chemo. There are 6 rounds before surgery. Although this time has gone by fast and the last couple of rounds have been more manageable. I find myself not wanting to move forward to the next Phase "Local Control".<br />
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<a href="http://4.bp.blogspot.com/-_3Ctt06B04k/T7OrxkGDzlI/AAAAAAAAA9M/5h4MpR-VYPY/s1600/IMG_1623.JPG" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="320" src="http://4.bp.blogspot.com/-_3Ctt06B04k/T7OrxkGDzlI/AAAAAAAAA9M/5h4MpR-VYPY/s320/IMG_1623.JPG" width="320" /></a><span class="Apple-style-span" style="-webkit-text-decorations-in-effect: none; color: black;">Of course there is still No doubt that we are doing the right thing. The problem is that I just want him to have more time, doing the things he feels well enough to do.</span><br />
<span class="Apple-style-span" style="-webkit-text-decorations-in-effect: none; color: black;">When he wears a hat (always) people don't even notice his bald head. He feels more comfortable going out that way. I worry how he will feel until he has adjusted to the attention from his prosthesis. He does not like the "attention" factor at all.</span><br />
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He has been feeling pretty great we were able to go to a Jazz Game 16th row. Too bad they lost, It was the first Playoff game we had been too. FUN<br />
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<a href="http://4.bp.blogspot.com/-dSmoYcwi1KM/T7Ot4OYKatI/AAAAAAAAA-U/bSAusWApbfs/s1600/DSCN5929.JPG" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="240" src="http://4.bp.blogspot.com/-dSmoYcwi1KM/T7Ot4OYKatI/AAAAAAAAA-U/bSAusWApbfs/s320/DSCN5929.JPG" width="320" /></a>Then we zipped around in a super fun convertible Mini Cooper that my dear friend Amy loaned to us for a weekend---she insisted & she was right it was very refreshing.<br />
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Tristan has only missed one of his brothers baseball games this season and that was because we were Inpatient for 5 day Chemo.<br />
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The Ursenbachs treated my family to a Bees Game. Amy arranged for all 3 boys to go down on the field for a pitching contest between innings. These spoiled boys came home with a Hat for Tristan a Jersey for Tanner and the winning prize, all compliments of the Ursenbachs.<br />
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He has been riding the little 4-wheeler all over the place, running, jumping playing with friends...ok so I am just trying to express that I LOVE how things feel mostly normal. I am so afraid for that to change again! I hate what Cancer is doing to Tristan's body & I hate what it does to my family. Yes we are STRONG, Yes we love and support each other 100%, but by all means this is not easy and comes with its challenges.<br />
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I have read several blogs recently (too bad I don't write them too) I feel somewhat guilty because I don't have the uplifting blog going on, but this is how I feel. As I sit here and cry for the pain and suffering yet to come for my Son, it is the lack of control and fear that I am trying to overcome.<br />
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I am trying to rely on the prayers and faith, that are strengthening & pulling us through. I will also note that I have complete faith that things will be ok. I just want it to be a little easier on the people that I love.<br />
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Lately I have had just an overwhelmed feeling that I cannot shake. Several things are contributing to this. Stress on my family being the biggest, Caring for Tristan, trying to keep up with both kids & school work, making Tanner feel special.<br />
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My husband has been having some dreams about Tristan being awake during his surgery which is upsetting to him (that upsets me).<br />
Even though our finances are good right now, I can't help but stress every time a bill comes and wonder how we are going to manage over years of treatments.<br />
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We have a couple fundraisers set in place. I am excited because for Tristan to see this Army of support coming to bat for him he is stregthened as are we all. Isn't it funny that the only real need is a cure.<br />
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There are so many things that I want to get done, but can't seem to actually tackle. Making t-shirts, getting out the wristbands (everyone loves them), I want to put together a Bake sale fundraiser & get our family pictures done.<br />
I would like to do as many positive & uplifting events or activities as possible with Tristan before his surgery, if you have ideas throw them my way.<br />
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Each week we are home Tristan has his blood drawn through his power port to send to lab for counts. This is done by our home health nurse Dillon on Monday's & Thursdays. Ideally his chemo treatment would be a week apart, each round is 2 weeks.<br />
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<span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;"><b><u>Induction Phase</u></b></span><br />
<i><span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;"><b>Round 1</b></span></i><br />
<span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;"><b> week 1 2-3 Days inpatient given Chemo VinCRIStine, DOXOrubicin & Cyclophosphamide.</b></span><br />
<span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;"><b> week 2 1 day Clinic visit given Chemo VinCRIStine</b></span><br />
<i><span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;"><b>Round 2</b></span></i><br />
<span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;"><b> week 3 5 days inpatient given Chemo Ifosfamide & Etoposide</b></span><br />
<a href="http://4.bp.blogspot.com/-epXT7WQPmgQ/T7OpyDedcdI/AAAAAAAAA8E/AfEQ9IvdvLo/s1600/IMG_1568.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;"><b><img border="0" height="320" src="http://4.bp.blogspot.com/-epXT7WQPmgQ/T7OpyDedcdI/AAAAAAAAA8E/AfEQ9IvdvLo/s320/IMG_1568.jpg" width="240" /></b></span></a><span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;"><b> week 4 none</b></span><br />
<span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;"><b><i>Round 3</i> (repeat week 1 & 2)</b></span><br />
<span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;"><b><i>Round 4 (</i>repeat week 3 & 4)</b></span><br />
<span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;"><b><i>Round 5</i> (repeat week 1 & 2)</b></span><br />
<span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;"><b><i>Round 6</i> (repeat week 3 & 4)</b></span><br />
<span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;"><b>**Scans & tests to see how tumor has responded and check for other side effects</b></span><br />
<span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;"><b><u>Local Control Phas</u>e</b></span><br />
<span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;"><b>**SURGERY</b></span><br />
<span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;"><b><u>Consolidation Phase</u> </b></span><br />
<span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;"><b>22 more weeks (11 weeks of Chemo treatments 2 weeks apart)</b></span><br />
<span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;"><b><u>REMISSION!</u></b></span><br />
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<a href="http://4.bp.blogspot.com/-uiMYTrUWgtk/T7OrW7aKjzI/AAAAAAAAA88/UzU7Cc6tfYs/s1600/IMG_1616.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="320" src="http://4.bp.blogspot.com/-uiMYTrUWgtk/T7OrW7aKjzI/AAAAAAAAA88/UzU7Cc6tfYs/s320/IMG_1616.jpg" width="240" /></a><u><span class="Apple-style-span" style="font-size: x-small;"><br /></span></u><br />
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<span class="Apple-style-span" style="-webkit-text-decorations-in-effect: none; color: black;">We just finished Round 4 and should have began round 5 yesterday. What we are finding is that he is not making counts in-between treatments. Its Not just his WBC or ANC but platelets and hematocrit levels also. Just before his 5 day treatment his ANC was too low. This made for a lot of work rescheduling the dentist appt he had (the morning of) and asking for a specific day and time the following week. </span><br />
<span class="Apple-style-span" style="-webkit-text-decorations-in-effect: none; color: black;"> Tristan was happy because he got a new puppy "Jersey" that he was able to play with the whole week. I was not on board for getting another dog, but she has been great for Tristan!</span></div>
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<a href="http://3.bp.blogspot.com/-4GJO-8g0WvI/T7OqgvvvxOI/AAAAAAAAA8c/Fa49wlNhSv0/s1600/IMG_1595.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="320" src="http://3.bp.blogspot.com/-4GJO-8g0WvI/T7OqgvvvxOI/AAAAAAAAA8c/Fa49wlNhSv0/s320/IMG_1595.jpg" width="240" /></a><a href="http://2.bp.blogspot.com/-MWALm_-lP8U/T7OpPb85SMI/AAAAAAAAA70/uBi0T1WtjzE/s1600/IMG_1566.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="320" src="http://2.bp.blogspot.com/-MWALm_-lP8U/T7OpPb85SMI/AAAAAAAAA70/uBi0T1WtjzE/s320/IMG_1566.jpg" width="240" /></a><br />
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We were able to get him in to the dentist to have 3 teeth pulled on Monday. He started Chemo the next Day May 1st. We had some amazing visitors right away. A very inspiring Young man Named Eric Merkley and his amazing Mother came to visit with Tristan. Eric was diagnosed with Osteosarcoma in Jan. 2011 and had a thru the knee amputation. He is now Cancer free. Eric is very athletic, played HS Basketball and had just received his LDS mission call. Tristan was a little nervous at first that a teenager was coming to visit, but just after they left he said to me "Mom I like Eric he is not one of those teenagers that thinks he is too cool and knows everything" lol. No, he was not. He was pure inspiration! Eric gave Tristan his # and said to call or text anytime, I wrote his blog address on the whiteboard and since then every nurse, Dr., Tech & Janitor was asking if we knew Eric & had a sweet story to share about him.<br />
Thank you Eric and Kris for taking the the to visit us, oh and the whole hospital says HELLO!<br />
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Chemo treatment went smoothly Tristan was not nauseated at all. There were a couple of moments his heart rate became elevated, so we slowed the chemo down and it seemed to work. I think we may finally have his anti-nausea meds down. He came home Saturday May 5 late evening around 8:30. He still felt good enough to take a spin in the mini with the top down.<br />
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<a href="http://1.bp.blogspot.com/-DwB8lFmoemM/T7On7I4ZFOI/AAAAAAAAA68/MCcJ5QHDZdw/s1600/IMG_1644.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="320" src="http://1.bp.blogspot.com/-DwB8lFmoemM/T7On7I4ZFOI/AAAAAAAAA68/MCcJ5QHDZdw/s320/IMG_1644.jpg" width="240" /></a><br />
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Next up... EKG and 2-3day Chemo on the 15th. Dillon came to draw blood Thursday the 10th and his hematocrit levels were very low. He needed a blood transfusion Friday morning, after 5 1/2 hours Tristan was feeling better and had more energy.<br />
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Monday the 14th when he drew blood and his platelets were too low for Chemo. We rescheduled the EKG and Chemo for Friday depending on counts from Thursday. I explained all of that probably too much, but this seems to be how it works and this is why we do not have a set date for his surgery or treatment to end. Each week we cannot go in for treatment adds an extra week to his treatment.<br />
This week we also had scheduled to participate in the Childrens Miracle Network telethon Commercial on KSL. Every year they do this to raise money for the Hospital.<br />
Tristan was asked to write his story about his hospital stays and then he would be filmed reading it.<br />
Childrens Miracle Network raises quite a bit of money money for the hospital and they are and amazing organization.<br />
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It will just make an extra trip to PCMC this week for us : ) Well worth this trip for a good cause.<br />
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I am so grateful that Tristan is tolerating the Chemo well, I am thankful to you for your thoughts and prayers and sweet messages. Once again I am sorry I can't get back to everyone, they do mean so much to us especially on the bad days.<br />
<a href="http://4.bp.blogspot.com/-mifSesLyiPA/T7OsnfrO0SI/AAAAAAAAA90/jh-duQnnMus/s1600/DSCN5897.JPG" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="240" src="http://4.bp.blogspot.com/-mifSesLyiPA/T7OsnfrO0SI/AAAAAAAAA90/jh-duQnnMus/s320/DSCN5897.JPG" width="320" /></a><br />
XOXO<br />
Tiffany<br />
P.S I so want a Mini Cooper Convertible Right Now.<br />
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<a href="http://3.bp.blogspot.com/-BXavihxnV5U/T7OtRJWbGXI/AAAAAAAAA-E/UwXwGTbIxsE/s1600/DSCN5914.JPG" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="240" src="http://3.bp.blogspot.com/-BXavihxnV5U/T7OtRJWbGXI/AAAAAAAAA-E/UwXwGTbIxsE/s320/DSCN5914.JPG" width="320" /></a></div>tristanhttp://www.blogger.com/profile/12963446237650977285noreply@blogger.com0tag:blogger.com,1999:blog-1428633358559256912.post-18504055309362008272012-05-13T20:12:00.002-07:002012-05-16T05:05:05.654-07:00Fundraisers<div class="separator" style="clear: both; text-align: center;">
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<span class="Apple-style-span" style="color: #333333; line-height: 14px;"><span class="Apple-style-span" style="font-family: 'Helvetica Neue', Arial, Helvetica, sans-serif;">No charge for babies or kids in strollers. there will be a 5.00 charge to get into event for everyone 8 and older if they did not pay for walk or the rally. there will be tons of stuff for kids to do I will get his name fixed this morning hope this helps. Let me know if you have any other questions.</span></span></div>
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<span class="Apple-style-span" style="color: #333333; line-height: 18px;"><span class="Apple-style-span" style="font-family: Verdana, sans-serif; font-size: large;"><b><a href="http://childrenandtheearth.com/" rel="nofollow nofollow" style="color: #3b5998; cursor: pointer; text-decoration: none;" target="_blank">http://childrenandtheearth.com/</a></b></span></span></div>
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<span style="color: #262626; font-family: 'Comic Sans MS'; font-size: 14pt;">Here is the Sponsor
info for The Gift of Life Brainwave event. We need sponsor's in by the end of
the month. Let us know if your company wants to be part of this Great Event. <o:p></o:p></span></div>
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<span style="color: #262626; font-family: 'Comic Sans MS'; font-size: 14pt;">200.00 Company name
goes on Posters<o:p></o:p></span></div>
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<span style="color: #262626; font-family: 'Comic Sans MS'; font-size: 14pt;">$500.00 Company name
goes on posters. Any type of advertising to go in bags for all walkers and
riders and can advertise business on all event sites<o:p></o:p></span></div>
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<span style="color: #262626; font-family: 'Comic Sans MS'; font-size: 14pt;">1000.00 and above
Name on Poster T-shirts Gets a Booth at the event and all the above benefits
also. Need sponsors in by the end of the month so hurry and get involved with
this event. <o:p></o:p></span></div>
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<a href="http://www.childrenandtheearth.com/"><b><span style="color: #2e428b; font-family: Ayuthaya; font-size: 14pt; text-decoration: none;">http://www.childrenandtheearth.com</span></b></a><b><span style="font-family: Ayuthaya; font-size: 14pt;"><o:p></o:p></span></b></div>
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<i><span style="color: #262626; font-family: Ayuthaya; font-size: 14pt;">To contact us by phone:</span></i><span style="color: #262626; font-family: Ayuthaya; font-size: 14pt;"> Amber Brosig 801.860.0725 <o:p></o:p></span></div>
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<span style="color: #262626; font-family: Ayuthaya; font-size: 14pt;">Fax: 801.568-9111</span><b><span style="color: #262626; font-family: Ayuthaya; font-size: 14pt;"><o:p></o:p></span></b><br />
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<br />tristanhttp://www.blogger.com/profile/12963446237650977285noreply@blogger.com0