Friday, July 6, 2012

More special Vistitors after surgery

  You can tell tristan is still a little groggy, in fact I am glad we got pictures or he might have thought he dreamed this...   but we were so excited that as soon as he got to his room these guys showed up is put a smile on his face...  
     
 This is the 'mom connection' my boys friends mom knows these Players  Matt asiata, shawn asiata,
and ray fenga and set this up.
Thank you thank you 


    Tanner says " That was a fun visit from Matt asiata, shawn asiata, and ray fenga thanks for comming"

Sean Asiata Utah Football 2010
       
 Matt Asiata Utah Ute football 2008 and Minnesota Viking now,                
            He was in town they have a short break...
                Took the time to come see my Baby.
                                            
                                                 There are so many good people out there!


                                                                       Cousin Riley
               Raeann                                          Grandma Northrup


Thursday, July 5, 2012

Surgery Day

The Morning of Surgery










 One brave boy headed of to surgury Dr said Lets get rid of this Cancer say goodbye, he gave hugs and walked away and around the corner...

12pm
1 more hour please watch him and guide the doctors

2 pm  and I still haven't seen my baby boy getting a little anxious!!




surgeon just came out to speak with us and his words were ' it could not have gone any better and hopefully he is now Cancer free"! We are still about an hour away from seeing him because he is getting casted and a pain block.
Below is a picture of the implant this is supposed to help stop the bone from growing and save us from more surgeries in the future.


He is out and in a doom. He asked for Tanner first and nearly pulled him in the bed with him. Then he made a heart with his hands for us. It was hard to capture but heartwrentching. I ❤my family!!!



Tristan's snoring has never sounded more beautiful!!!!

Thank you once again for the prayers and love being sent our way.
This has not and will not be easy!
I think the tears cried now are tears of relief.
last update 9pm he is doing great and feeling NO pain!!



Week of Surgery

Monday July 2nd 


Diagnosed 4 months ago. Surgery in 4 days. Pray for counts to be good tomorrow (now today).

****thank you for the many prayers that have carried us this far, they never go unnoticed!



Tuesday July 3rd

Tristan's Counts are high enough. Surgery is scheduled for 9:15 on Thursday. It is about a 3 hr surgery. He will stay in the hospital for 3-4 days have a cast over the stump for 2 weeks and then be fit for prosthetic 2-4 weeks after depending on swelling. Chemo resumes 2 weeks after surgery and they will have the results back on the % of cancer removed with the tumor that day also.
We are all at peace for now so be happy not sad and please keep praying!
Much much love and thanks from our family to all of yours.
Kinda bugged, got home and got a call to come back for blood and platelets... Wish they could have done that this morning!
Wendsday July 4th
   
                                                              Happy Independence Day!
Day before the BIG SURGURY!!
Went to Spiderman w/ Mom, Dad and Tanner,Grandpa and Grandma (Down the hill) Riley,Gavin
Had a blessing

 
Went and did family pictures,
Ate crab for dinner
Went and watched  fireworks with Mom, Dad and Tanner.
                                                           HAPPY FOURTH OR JULY!!

Dr Randall Our Surgeon

This is our surgeon and one of my Heros these days. I am so thankful to him for helping to save my sons life. Pretty unbelievable that we have the BEST of the BEST on out team!
 

R. Lor Randall, M.D., B.A.

Bio

R. Lor Randall, MD, FACS, is the Director of Sarcoma Services at the University of Utah’s Huntsman Cancer Institute and Primary Children’s Medical Center. He has a busy quaternary referral clinical practice specializing in musculoskeletal surgical oncology. Dr. Randall is also the Medical Director of the Huntsman Cancer Hospital Operating Rooms. The Sarcoma Services at HCI, because of its comprehensive experience in sarcomas, is continually developing and refining institutional based research and treatment protocols to improve the outcome in these rare but highly malignant conditions. HCI is a SARC participant and also is very active in the Children’s Oncology Group.

Dr. Randall is a Professor of Orthopaedics and The L.B. & Olive S. Young Endowed Chair for Cancer Research. Among his academic responsibilities, he is chief of the Sarcoma Array Research Consortium (SARC) Lab, a laboratory investigating the molecular genetic mechanisms that give rise to sarcomas. In a joint effort with universities around the country, the SARC Lab is able to process and analyze donated tissue samples and report back to collaborators. The SARC Lab also has mechanistic experiments looking at genes involved in regulating apoptosis in sarcomas. Other areas of funded research include EGF modulated gene synchronization in desmoids. Randall developed the Sarcoma Advanced Research and Clinical (SARC) Fellowship. The Fellowship provides extensive exposure to tertiary/quaternary sarcoma surgery. The clinical experience includes the work up and management of the complete array of benign and malignant musculoskeletal neoplastic and pseudoneoplastic conditions, with broad pediatric and adult exposure. Basic, translational, and clinical research opportunities are readily available for Fellows.

Randall came to Huntsman Cancer Institute in 1998 from The University of Washington, where he completed a fellowship in musculoskeletal oncology. He graduated from Yale University School of Medicine in 1992 and completed a residency in orthopedic surgery at the University of California, San Francisco. Dr. Randall's clinical and research efforts have been recognized internationally. Amongst his honors, he is the recipient of the Association of Bone and Joint Surgeons' Musculoskeletal Tumor Society Scholar Award as well as Best Paper Award and has been invited as an American-British-Canadian Traveling Fellow. He is presently President of the Connective Tissue Oncology Society, and a member of several national and international oncology and surgical societies including the National Comprehensive Cancer Network, Musculoskeletal Tumor Society, Children's Oncology Group, Interurban Orthopaedic Society and the Association of Bone and Joint Surgeons. He is a Fellow of the American College of Surgeons and is the author of numerous scientific manuscripts, book chapters and abstracts in the field of sarcoma surgery and biology.

Never a DULL moment

 
Something that started out as a fun get our mind of the surgury kind of day sure changed fast when the boys were fishing and looked up and seen the fire bigger then the house in front of us....



                                     I have to admitt I thought again why
                                     me?                            
                                   Why everywhere I go something is happening ? 


Gave us a scare even packed bags to get out fast after that fire in Herriman 2 years ago we were going to be ready..
Thank goodness it didn't come our way and the Firefighters did an AMAZING job fighting and protecting the houses..





Ewing's Sarcoma Bone Cancer

There is no known cause of Ewing's sarcoma.

Most cancers are known to arise from a certain kind of tissue or organ. For example, breast cancer arises from breast cells. In the case of Ewing's sarcoma, however, doctors do not know the exact type of cell where the cancer starts.

What is known is that the cancer forms when changes occur in a cell's chromosomes. In Ewing's sarcoma cells, the genetic... material in chromosomes #11 and #22 is mismatched. This genetic abnormality is not inherited from a child's parents - the chromosomal changes occur after a child is born.

It is not understood why this abnormality occurs. Doctors have not identified any risk factors that make one child more susceptible than another. The tumor does not develop as a result of any dietary, social, or behavioral habits. There are no known ways to prevent the disease, and parents should know that there is nothing they could have done differently to prevent their child's tumor.
 
 
 
-To the lady that suggested I could have prevented this Cancer by taking my prenatal vitamins properly. (which I did) ~ bah..... some people!

Jazz Bear and Jery Sloan



Who is special and gets visits from the JAZZ BEAR and JERRY SLOAN
That's right  TRISTAN does!!!

        So Awesome brightend this boys day....

 




How exciting it was and  so fun it turned a sad day into a Happy day thanks for setting this up and for Brightening our day with some awesome people!!